Research Participation Opportunities (General Audience)

Participate in a research study about your thoughts and feelings about autism services.

They are looking for people with autism and their families to take an online survey about how you think and feel about different services you may have used. If you would like to participate, please click on the link: https://www.surveymonkey.com/r/N2LZ5J5. The survey can be completed in English, French, Italian, or German.

To thank you for taking part in this survey, you will be given the opportunity to enter your email into a drawing for one of five 100$(CAD) Amazon gift cards. Your email address will not be linked to your survey responses and they will not keep your email address after the drawing has been completed – it is only going to be used to select gift card winners.

KidsFirst is recruiting parents of children (all ages) diagnosed with autism to enroll in a research registry aimed at identifying similarities across children and establishing behavioral classification to better understand autism. At enrollment, they ask parents to answer a ten-minute survey which will guide future requests for information, such as more targeted follow up questions and possible genetic sampling.

The information you provide will help them translate findings into targeted approaches for therapy, care, and intervention. All information gathered will be strictly confidential, anonymized, and encrypted in our HIPAA-compliant repository.

There is no cost to participate and all correspondence is through the registry, email, and telephone. There are no in-person appointments. The International Center for Autism Research and Education (ICARE) at Case Western Reserve University is partnered with the Hartwell Foundation and Stanford University to establish Northeast Ohio as a site in the KidsFirst Research Registry.