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Self Advocacy (Parents/Family Members)

This webpage is a resource. Milestones Organization does not endorse or recommend any providers, methodologies or services from any of the groups or companies listed below.


“Is It Autism? A Guide for Adults” — Autism Speaks

Contact:

Agency: Autism Speaks

Website:
Click here »

Audience:

Parents/Family Members, 22+ Years

Categories:

Self Advocacy


As autism awareness has grown dramatically in recent years, many young adults and adults have learned the signs and felt there may be a connection between their feelings and behaviors and the symptoms of autism.

“Is It Autism and If So, What Next? A Guide for Adults” was designed to help adults who suspect they may have autism, as well as those recently diagnosed with the disorder. This kit will provide an overview of autism to help you better understand the disorder and will hopefully clarify whether you should seek out a professional for a thorough evaluation.


A Guide to Travel Training — Ride Connection, Portland Oregon

Contact:

Audience:

Parents/Family Members, 22+ Years

Categories:

Community Life: Transportation, Self Advocacy


The goal of the RideWise Program is to promote the independent travel of older adults and people with disabilities by providing free access to training and support. This guide was created to cover a wide range of topics related to travel using a fixed-route transportation system.

Read the guide here.


Advocacy Tool Kit – Autism Speaks

Contact:

Agency: Autism Speaks

Website:
Click here »

Audience:

Parents/Family Members, 14-21 Years, 22+ Years

Categories:

Self Advocacy, Support Groups: Guides


This tool kit provides basic information on advocacy and negotiation skills. The information in this kit has been provided by experts in the field who have both professional and personal experience with advocacy and autism.


After You Receive the Diagnosis of an Autism Spectrum Disorder: A Resource for Adolescents and Adults Who Are Newly Diagnosed

Contact:

Agency: Indiana Resource Center for Autism

Website:
Click here »

Audience:

Parents/Family Members, General Audience

Categories:

Self Advocacy, Transition to Adulthood: Guides


This new publication, developed by the Indiana Resource Center for Autism at the Indiana Institute on Disability and Community, is designed to provide adults, teens, and Indiana families a place to start to navigate systems after receiving a diagnosis of an autism spectrum disorder.

The booklet includes information on what it means to have an autism spectrum disorder diagnosis, what services and supports are available, funding, and a state resource list.


Autism Personal Coach

Contact:

Name: Doug Blecher

Title: Founder

Phone: (216) 336-5889

Email:
autismpersonalcoach@yahoo.com

Website:
Click here »

Audience:

Parents/Family Members, 14-21 Years, 22+ Years

Categories:

Self Advocacy, Social & Recreation: Social Groups and Playgroups, Support Groups: Self Advocates


This organization helps individuals on the autism spectrum with social groups and provides coaching for employment, independent living and other teen and adult related needs (ages 14+).

A monthly Asperger’s Adult Support group is available for adults with Asperger’s to socialize and discuss pertinent issues in their lives. Meetings are held at the Rocky River library and Beachwood library. The group also organizes occasional social events. They also host a monthly mindfulness event for individuals with autism. Each event will take place at a different location. Reservations are required to attend.

In addition, Autism Personal Coach offers a PARENT support group, dates and topics vary. Reservations are required to attend.

Visit the ASPIES website or search our Event Calendar for upcoming meeting dates.


Autistic Self-Advocacy Network (ASAN)

Contact:

Website:
Click here »

Audience:

Parents/Family Members, 14-21 Years, 22+ Years

Categories:

Self Advocacy, Transition to Adulthood: Websites


Advocacy group that organizes an online community of adults and youths with autism.


iAdvocate App

Contact:

Website:
Click here »

Audience:

Parents/Family Members

Categories:

Technology: Apps, Self Advocacy


Advocacy tool for parents of students with disabilities working collaboratively with a school team to improve their child’s education.


Living, Loving and Laughing with Asperger’s (Volume 1)

Contact:

Website:
Click here »

Audience:

Parents/Family Members, General Audience

Categories:

Self Advocacy


52 Tips, Stories and Inspirational Ideas for Parents of Children with Asperger’s (Living, Loving and Laughing with Asperger’s Series)

Author: Dave Angel

Free downloadable book from Amazon.com


Navigating College: A Handbook on Self-Advocacy

Contact:

Website:
Click here »

Audience:

Parents/Family Members, 22+ Years, General Audience

Categories:

Education: College Research, Self Advocacy


A first-of-its-kind resource written by autistic adults for autistic college students exploring the various aspects of the higher education experience.


Project STIR (Steps Toward Independence and Responsibility)

Address:

705 Lakeview Plaza Blvd, Suite E
Worthington, OH 43085

Contact:

Phone: (614) 562-1375

Agency: Ohio Self Determination Association

Website:
Click here »

Audience:

Parents/Family Members, 22+ Years

Categories:

Self Advocacy


A Hands-On training for and by people with disabilities that is designed to provice the tools to be a good self advocate, connect with others in advocacy and gain leadership skills and experience.


The ADA National Network Disability Law Handbook

Contact:

Phone: (800) 949-4232

Agency: ADA National Network

Website:
Click here »

Audience:

Parents/Family Members, General Audience

Categories:

Self Advocacy, Support Groups: Guides


Published by the Southwest ADA Center, on behalf of The National Network of ADA Centers, this 110-page handbook is written in a practical FAQ (frequently asked questions) format. It provides answers to common questions about the ADA, the ADA Amendments Act, the Rehabilitation Act, Social Security, the Air Carrier Access Act, the Individuals with Disabilities Education Act, the Civil Rights of Institutionalized Persons Act, and the Fair Housing Act Amendments.


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This website was made possible by the generosity of Lois Joan Davis and grants from the William J. & Dorothy K. O'Neill Foundation and the David and Robert Stein Family Foundation, a supporting foundation of the Jewish Federation of Cleveland.

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